Tag: Hypoglycemia

Wordless Wednesday #6

Happy Diabetes Awareness Month Friends! My aim this month is to try and spread as much awareness for diabetes as I can.  As someone who advocates for diabetes, I want to continue to share the correct message about what it truly means to live with this condition.

JDRF have created an amazing tool which helps diabetics calculate some of their personal daily diabetes stats. I wanted to share my stats with you so you can have an insight into what my life with this condition has been like and what it has taken for me to still be here living a healthy life style.

jdrf-t1dfootprint-11

This is a rough calculation as there wasn’t an option to enter how many injections you took per day. In my case, I went from 2 injections a day to 5 injections a day in my teens, therefore the number would probably be a lot higher.

jdrf-t1dfootprint-12

These calculations are for my time on an Insulin Pump – 7 years and 5 months.

 

If you want to calculate your own or your loved ones footprint then click here.

 

Amina xx

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Myabetic Giveaway 1st November -14th November 2016

Since today marks the beginning of Diabetes Awareness Month, what better way to kick-start the month and advocate for diabetes, than by collaborating with some of diabetes extremely influencial bloggers and advocates, to give away accessories from one of my favourite diabetes companies  – Myabetic

myabetic6girlmyabetic5-boy

I absolutely love the accessories available!! If you don’t know anything about the Myabetic accessories then I suggest you check out their site here.

Their amazing accessories, for me, have become the Chanel of diabetes. It has transformed the dull and sometimes invisible blood glucose case I’ve carried around with me most of my life into something that I can be proud of. On first glance, you would perceive it to a beautiful handbag or wallet and it is on closer inspection that its true purpose comes to light.

myabetic7-red-girlWhen I first heard about Myabetic accessories, I was instantly drawn to them. They were bold, chic and beautifully put together. It offers a way for diabetics of all ages, men women and children to express themselves. The dismal blacks and greys that I was once restricted to were now being transformed into something that was very personal to me. It offered many varied, vibrant and colourful choices, which made misplacing my blood glucose meter a thing of the past. Like a brand new bag, it showed my individuality and allowed me to be proud of my diabetes.

myabetic3

myabetic-pic-for-tuesday-3

Here’s what you need to do to be in with a chance to win the Myabetic accessory of your choice:

  • Go to TheFitBlog
  • Click on the giveaway form
  • Follow Myabetic, TheFitBlog and all the other diabetes advocates on social media.

You can follow me here:

Follow in as many places as you can and share the post with friends online.

 **Giveaway runs from today the 1st of November – 14th November 2016. The winner will be drawn randomly  at noon on the14th of November and contacted directly by email.

 

GOOD LUCK EVERYONE. I WISH YOU ALL THE BEST!

 

Amina xx

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Sick Days!

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Having a cold can be awful, but a cold combined with diabetes is even worse. It messes with your sugar levels making them difficult to manage. Blood glucose levels can become extremely high. These high BG levels are due to a release of stress hormone which occurs when the body is fighting an illness. Glucose is produced in abundance making BG levels sky-rocket.

This weekend I’ve been fighting a cold. I always try to be prepared for cold viruses but the truth is you can never really be prepared. I’ve realised that sometimes the plan can completely fall apart. Usually, I struggle with very high BG levels when I have a cold.  However, this time,  Instead of high BG levels, I experienced a combination of extremely low blood glucose levels and a few high BG levels. So I’ve literally been “yo-yo’in” all over the place.  PFFFFFF!!

Last night, after hours of trying to correct my BG level, I made the decision to completely suspend my pump because my BG level would not go any higher than 4.2 mmol/l, even whilst my pump was suspended. It remained on 4.2 mmol/l and then started to drop again. It was not until I administered a Glucagon injection that I was able to finally reach a BG of 6.0 mmols/l, at which point I was so exhausted that I passed at 3am until this morning.

Even though my BG levels have been fluctuating, I’ve still tried my best to follow a few steps to maintain some level of control with my sugars.

Here are a few things I do:

  • Regularly monitor my glucose levels
  • Check for ketones if  my sugar is high
  • Drink a lot of water to dilute the glucose in my blood and also to keep myself hydrated.
  • If I continue to experience high sugars then I make a slight adjustment in my basal rates by first using the temp basal function on my pump. I usually increase my temp basal initially by 20%,over two hours, whilst continuously monitoring my BG levels. It’s probably wise to seek advice from a doctor with this if you haven’t discussed a sick day plan for your insulin. Also, when I was on multiple daily injections, if my BG rose above 13mmol/l then I’d increase my dose by units for each injection. If it went over 22mmol/lk then I would increase my dose by 4 units per injection. ((Please seek advice from your doctor before you do this))
  • Even though I can’t really taste much and I don’t feel like eating, I still force myself to eat something.
  • Although high BG levels are prone, make sure you still have an up to date Glucagon injection in cases of Hypoglycaemia.

Amina xx

Non- diabetic but you’re affected by Hypoglycaemia!!

I deal with hypos on weekly basis. Hypoglycaemia and diabetes go hand in hand. These attacks occur when blood glucose levels are too low. For me, this usually happens when I’ve taken too much insulin, not eaten enough food, eaten too late or depending on the type of exercise I choose to do that day. For example, cardio or HIIT (high-intensity interval training) all cause my blood glucose level to drop.

However, non -diabetic hypoglycaemia is a very rare condition which affects individuals who aren’t suffering from diabetes. These individual’s experience hypoglycaemic episodes resulting in the same symptoms that a person with diabetes would experience.

So what are some of the symptoms one can experience?

Some of these symptoms include:

  • Feeling weak
  • hungry
  • Breaking out into cold sweats
  • Feeling anxious
  • Dizzy
  • irritable
  • confused
  • Difficulty being able to articulate
  • Feeling shaky
  • Nervous

My first encounter with this condition was during my final year of University. I met a veterinarian surgeon in the USA and at first, I thought that she was diabetic just like me. She always carried glucotabs with her and was always ready with a snack. She used words that I always found myself saying when my sugar drops such as,

“my sugar is dropping”, or “my sugar is low”.

So I just presumed that she was diabetic too. I proceeded to ask her if she was diabetic too? But to my surprise, she told me that she wasn’t diabetic and in fact, she was a non-reactive hypoglycaemic.

A non-diabetic individual can experience two types of hypoglycaemia:

  • Reactive hypoglycaemia which happens a few hours after consuming food
  • Fasting hypoglycaemia ( which occurs before the consumption of any food)

Potential causes of Reactive Hypoglycaemia:

  • The presence of Prediabetes or a family history of diabetes.
  • A deficiency in enzymes which make it difficult for the body to break down foods you consume.
  • Other possible reasons are some types of stomach surgeries, which makes food pass into the small intestines rapidly.

Potential causes of Fasting Hypoglycaemia:

  • Over indulgence in Alcohol (especially binge drinking)
  • Illnesses which affect the heart, liver or kidneys
  • Low levels of hormones such as growth hormone, glucagon, cortisol and epinephrine.
  • The presence of pancreatic tumours that are capable of producing insulin or similar hormones which have the effect of lowering blood glucose levels.
  • Medication such as antibiotics, quinine (used to treat Malaria), pentamidine (used to treat Pneumonia) and also pain suppressants can all effect the body’s ability to regulate insulin release into the blood.

How do people manage their non-diabetic hypoglycaemia? 

Take a look at these video by youtube vlogger : blogsoidontforget as she goes through the ins and outs of living and managing the condition.

Treatment for non-diabetic hypoglycaemia really depends on what the cause may be. Seek advice from your doctor, take note when you experience these episodes and also how you feel during those times.

 

Amina xx

Guest Post: Appleton

INTRODUCING

APPLETON

 

Appleton undercover

Appleton is an Artist and Photographer, who has been creating art images and sculptures for over 40 years. He attended Boston University, where he studied both art and photography. After completing his studies, he moved to New York City, where he found that the diverse cultural landscape offered him great inspiration for much of his early documentary work.

Area’s such as, West Side Highline, before its massive makeover specifically offered a great platform for inspiration.

“The old rusted tracks and overgrown grass,  the bright open and vastness would become negatives that would eventually fill a few three-ring binders. A love of industrial objects, the lost and found would become the work and the sculptures.”

All a Board

All a Board

Appleton’s work, takes the ordinary, often overlooked images, the ones you walk past everyday to another place and time, he is able to bring these images to their rightful place.

South Bound

South Bound

 

Appleton’s relationship with Diabetes,

One of the main focuses of Appleton’s current pieces, is to promote diabetes awareness by incorporating into his work different essentials diabetics need on a daily basis to survive.

 

Some-times-you-have-to-Spell-it-out.

Some-times-you-have-to-Spell-it-out.

 

After surviving a diabetic coma at the age of six, Appleton began to collect almost every insulin bottle that had gone through his system. This amounted to hundreds of insulin vials, faded syringes and old blood strips. They were all reminders of his survival through the years.

 

With no cure in sight, Appleton’s mission is to spread and raise awareness of diabetes through his art. Appleton hopes to inspire the millions who have this nightmare of a disease, to carry on but also to educate those who know nothing of the condition. By doing this, he also hopes to eliminate misconceptions and false hoods about the condition.

Cool Blue Designer Insulin

Cool Blue Designer Insulin

Joseph BeuysMark Rothko, Gerhard Richter, Andrew Goldsworthy, the Starn Twins and Shepard Fairey  – are amongst many artists that have greatly inspired Appleton.

Thank you Appleton for sharing your truly inspirational pieces. Your creativity has motivated me to continue to share my experiences with diabetes and I know that it will also inspire many others living with this awful disease. I’m also convinced that, it will reach many others who have yet to learn about this condition.

Connect with Appleton @   www.AppletonArtWorks.com @appletonpictures (instagram)

 

Amina xx

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Guest post: The Fit Blog Part 1

I’d like to introduce husband and wife, fitness instructors, Christel (who has type 1 diabetes) and Tobias. Through their blog, TheFitBlog, they share CNT1their passion for a healthy and fit lifestyle, whist giving people the support to succeed with their fitness goals.

How did you start TheFitBlog?

Tobias and I have always had the desire to do our own thing. The summer of 2015 it all came together and we decided to take a leap of faith and make our hobby and passion our occupation. TheFitBlog is a general health and fitness site while the “Fit with Diabetes” section on the blog is my platform to discuss health and fitness from a diabetes perspective.

When I started working out more seriously, I searched without much luck for good information online on how to successfully combine training and diabetes management, so I had to figure it out on my own. TheFitBlog is my chance to share my experience and learnings with others.

How long have you had type 1 diabetes? How did you find out? What steps did you take?

I was diagnosed with Type 1 diabetes in December 1997. I’d just finished high school that summer and spent my time working in a preschool, partying hard and eating and drinking everything in sight. I displayed all the classical diabetes symptoms; hunger, thirst, sleepiness, frequent need to urinate and a slender physique. But all of that I simply attributed to my lifestyle.

At one point, my family did urge me to see a doctor, I did, and he was determined I had diabetes. I was admitted to a diabetes clinic as an outpatient and they spent the next two days teaching me about diabetes, how to take my shots, test my blood sugars and how to treat lows. First day of my diagnosis I was encouraged to never let my diabetes manage my life or to be a hindrance and I took that to heart and have lived by it ever since. Eight months later, I left for my first backpacking trip around India and I never slowed down.

How often do you work out?

Hi, my name is Christel, and I’m a workout –holic :-). I’m in the gym 6 days a week right now. However, 2016 is also a competition year for me so I’m working out as an athlete. I compete in NPC bikini competitions and have qualified to potentially take home a pro card later this year. A more normal gym schedule for me is 4-5 times a week and I think that is plenty for most people.Untitled-11

How do you balance working out with diabetes?

There is definitely a learning curve, but once I understood my body and how I react to different kinds of exercise, it’s actually pretty easy. When you understand how your body reacts to certain foods and exercise you’ll know how to adjust your insulin and not have to worry about lows all the time. Of course, I don’t always get it right but 95% of the time my sugars are perfect pre, during and post a workout. My advice is to take a lot of notes and find out how your body reacts to different foods and exercise and learn from it. In the long run, I find that working out makes your diabetes easier to manage, not harder.

How often do you have rest days?

Rest days are usually the hard ones for me since my insulin sensitivity goes down. I have a minimum of one rest day per week. There are some great sunset walks where we live in Santa Monica CA. It’s important to have rest days, since that’s when your body rebuilds and get stronger.

“When I work out, I’ve found that it’s much better for me to work out in the morning opposed to the evening. My sugars have a tendency to drop drastically in the night time, so I lean towards working out in the morning. Being able to stay motivated whilst maintaining good BG levels is extremely difficult.”

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What time of day do you like to work out? Have you found that working out at certain times are better for you and your BG levels?

My advice is to work out the time of day that suits you best. In the morning, you’ll have less insulin on-board so you’ll be less prone to low blood sugar. If your goal is weight loss, you might even benefit from morning sessions before breakfast. I do fasting cardio in the morning and resistance training in the afternoon/evening to build muscle mass. The key is to determine the right insulin level. It will depend on what you eat, your insulin sensitivity and how aggressively you work out.

Do you use a pump or injections?

I’m one of the rare MDI / CGM combinations. Pumps are awesome, but not for me at this time in my life. It’s still an extremely valuable tool and something I recommend for everyone who starts working out. I have very good control with MDI because I’m willing to inject 10 times a day if needed and test my blood sugar just as often.

How often do you test your BG and how do you record your BG levels?

Whenever I feel I need it. So it might be 10 times a day or it might be 8. I have a Bayer meter that saves all my readings so I can just download it when needed.

How do you stay motivated whilst managing low BG levels?

I guess I really don’t think about my blood sugar in those terms. My motivation to do what I do is not affected by my blood sugars. I manage them to allow me to do what I do.

How do you correct your BG levels without ruining the hard work you’ve put in?

By learning how much insulin and food to consume around workouts I hardly ever have low blood sugars during exercise. If I do, I treat it as it is; a medical emergency. I’ll eat 2-3 glucose tablets and either have a fruit strip and continue my workout or simply go home. A few glucose tablets and a fruit strip will never ruin your progress even if you are trying to drop weight. What will derail your progress is if you treat lows with candy or sugary soda.

What advice do you give to your diabetic clients when it comes to low/high BG’s when working out?

I always have clients track their activities, food, sleep patterns etc., and then together we work on determining why and when he or she is going low to reduce the risk of it happening

“As a mother, my schedule can be pretty hectic and fitting in a work out can sometimes be impossible. I like to do quick HIT workouts for a 20- 30 minute period or target one area e.g. my abs. My goal is to be working out a lot more than I currently do.”

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What advice would you give to me and to others who are struggling to achieve their fitness goals due to the hectic lifestyles or plummeting BG levels?

Even a little physical activity is better than nothing. First, decide what you want to achieve. If it’s cardiovascular health, focus on cardio. If it’s building strength, chose resistance training. Since time is a limited resource, you might have to focus your attention to one thing only.

I mainly do resistance training, because I think it gives a better return on the time I spend. Muscles help burn calories and increase your insulin sensitivity, so adding a little muscle mass is great for people with diabetes.

The reason why your blood sugars drop when you work out is that you have too much insulin in your system. So just as you learn your carb ratios over time, put in the time to get to know your insulin sensitivity after different types of workouts and adjust your insulin accordingly.

Look out for Part 2 of TheFitBlog guest post from Christel and Tobias on Nutrition. In the mean time if you want to read more about Christel and Tobias, then check out their blog at TheFitBlog. You can also find them on Twitter , Facebook and Instagram.

Amina xx

Snow day tips!

Yesterday, I was discussing the seasons with my son and now that it’s March we’d soon be able to see flowers blooming. However, this morning, we woke up to this!

snowfall

I love a bit of snow but I always have to take into consideration, how the colder weather will affect my BG levels. In most conditions, whether it’s hot, humid or cold, my BG levels always drop. So I knew I had to prepare myself, especially since I had the morning school run to do (which also meant I’d be driving) so yet another reasons to make sure my BG levels were under control. With all of this in mind, I’ve put together a list of tips on how to manage BG levels in the colder weather.

Test, test, test don’t guesstimate:
The cold weather can definitely affect your levels, so always remember to check your BG levels often. Frequent testing will allow you to avoid any high or low BG levels. Test before you leave the house. When I drive, I always make sure my BG is around 7mmol/l so today I started at 7.8mmol/l.

A few hours after school run……..

BGMETER

Stay warm:
Make sure you’re dressed in warm clothing. Wearing gloves will help to keep your fingers warm so that when you need to test your BG level your fingers aren’t completely frozen. Try to warm them up before testing so you are able to get enough blood. Although I had gloves on this morning, my hands were still a little cold, so I used the car heater to warm them up. Also make sure you wear comfortable and warm shoes with a good grip that will protect your feet and keep them warm to ensure good circulation. Keep your feet well moisturised and check them regularly for any cuts or cracks etc.

Glucose:
Make sure you take some form of glucose with you when you leave the house. Choose glucose that will not freeze in the car. You need something that is easy to access in case of a low BG. I have a secret draw in my car where I hide snacks and juice boxes just etc. Just in case my BG decides to drop.

Protect your insulin and devices:
Just like hot weather, the cold weather can also affect your diabetes accessories. If you wear an insulin pump, wear the pump close to your body, under layers of clothing. In extreme weathers, insulin can break down and become ineffective. Also make sure your BG meter is in its case. I usually wrap it in a towel, if I’m travelling in the car for a long period of time in the cold.

Stay active:
The cold weather can make you want to just snuggle up in a nice warm blanket with a hot cup of tea or coffee. Nevertheless, you should try to keep yourself active during these colder temperatures. When you move around it will help to keep BG levels lower even when the weather isn’t a factor. Just because its cold and snowing outside doesn’t mean you can’t enjoy the weather. I like to play in the snow with my children, building snowmen and throwing snow balls.Exercise is key!

snowboots

Cutting back:
Because my BG levels like to drop, this usually means I have to adjust my basal rates. If you notice a change in your levels then contact your healthcare team so they can help you adjust your rates.

 

Amina xx

 

Let them in!

How do you even begin to explain to your children, what diabetes is? It’s extremely important for them to know, but how much is enough?

My eldest has always been curious about my diabetes and all the technology I am so lucky to have. Isasmiling

He has many interesting questions;

“Mami, How’s does my body know how to produce insulin and yours doesn’t?
“What is Insulin?”
“What does insulin do?”
“When your sugar goes too high, what’s happening inside your body?”
“How does my body know when to stop giving me insulin, when I’ve eaten something?”

Which really helps me explain diabetes better and with ease. I try my best to answer his questions, as simply as I possibly can. Confusion and worry is the last thing you want, especially when you’re trying to enlighten a 6 year old about diabetes. Now I’ve come to think about it, I wouldn’t want to confuse anyone. There’s already enough confusion when it comes diabetes.

It’s not an easy job, but who said it was going to be? The fact that he is even asking, shows me that he has an interest in what is happening with me, me, his mother.

The way I look at it is, his questions are an opening, an opportunity for me to show him this side of me. He’s at that age, where he questions everything. He wants to know more. The short answer isn’t good enough. He wants to know every last detail. However, I still approach the ‘diabetes’ subject in a gentle way.

He’s observed me countless times changing my insert and knows that when I prick my finger, I’m in fact checking my sugar level. He’ll watch and wait for the numbers, close his eyes and say, “I really hope it’s a good number mami.” (Heart break) He now also knows that I’m looking for the best number range to appear on the screen of my BG meter.

What truly amazed me the other day, was when I was having a hypo. I made mention that I was feeling hungry, so he asked me if I wanted him to get my BG meter so I could test my level. So I said, “Yes ok”. I pricked my finger, applied the blood to the strip and he wait to see what it read. It was 4.2 and most likely on its way down, considering the way I was starting to feel. Before I could even get up, he’d ran to the kitchen and brought back a box of juice from my goody draw and said, “Here you go mami.”

Recently, he asked me if he could test his BG level, which totally blew me away. He is a very sensitive soul and extremely squeamish when it comes to cuts and blood, so I was shocked that he even asked. Of course, I completely jumped on this opportunity to explain to him what was required to test a BG level. Then, I asked him if he was ready he said, yes. I pricked him, he flinched a little bit and then smiled. We quickly put the blood on the test strip and he waited with excitement to see what numbers would appear.

Isabgtesting

I praised him for being such a brave boy and he responded with, “mami, I don’t know how you do this every day.” I smiled at him, trying not to cry up a storm and I just explained to him that it was something that I had to do. Just like sleeping and eating, are the things we all need to do. He replied with, “but this is harder and you’re very brave mami.” (Heartbreak)

 

Now my 2 year old, as young as that might seem has also started to develop a very basic understanding of me having to always check my BG levels and change my insert. From the moment she was born, she’s been observing me, pricking my fingers and most likely hearing the familiar beeping sounds, being emitted from my pump.Untitled-3

Her favourite kiddie show is doc Mc stuffin’s and there’s a theme song. “Time for your check-up”. How do I explain this, she’s a child, who plays a doctor who fixes broken toys by finding a diagnosis. Yes I watch it too hahaha!

Moving on……

This morning, she ran to find my BG meter and reminded me, that I needed to do have a check-up. I laughed! She stood there with a huge smile on her face, while waiting eagerly for me to do it. Usually, when she sees blood she’ll say, “Ouch!” However, this time she just watched. Another thing she has taken to doing is, asking me if I’ve done a check-up when were sat down to a meal. When this happened for the first time, I realised that she had made the connection between me eating and testing my BG.

See already her understanding is developing!

They both amaze me because they aren’t frightened to be around my diabetes. It’s become quite normal for them to see me change my insert or test my BG. They have the understanding that it is a part of me and I think that they are alright with that. As they mature, they’ll develop a further understanding and in turn they will have a better understanding of my daily lifestyle.

isaandsusu

Word of advice….

If your children are asking you about your diabetes, don’t be afraid to explain it to them. Be open and honest with them, let them in. You’re important to them, if not one of the most important things in their lives. Even if they aren’t asking questions, you can always start by mentioning little things, giving them snippets of your life.

diabetesluvones

Although, this is an experience about me and my family, this can be related to anyone in any relationship. If they are asking questions, answer them as simply as you can. Once you’ve opened that door of conversation, the questions will come thick and fast. But don’t panic! Don’t give too much detail at once and scare them to death. Stay positive when expressing things to them, which will allow them to absorb the information with confidence and know that things are ok with you. Diabetes awareness starts at home. Just think the knowledge you pass on to your loved ones, could potentially help another person in the future.

Please comment below and let me know your stories and how you’ve explained ‘diabetes’ to your loved ones?

Amina xx

A BS kinda day!

*BS  as in  Blood  Sugars*

Unless you are a diabetic or a person who has a loved one who suffers from diabetes, you may have no idea what diabetes is all about. How constant it is and in actual fact, how life threatening it can be. It is a hard condition to manage and you may not even consider the daily vigilance an individual needs to have, in order to keep a tight reign on their blood glucose levels.

I thought the best way to develop an understanding of what day to day living with diabetes can be like, was to give you a glimpse into the sort of days I can have. Every day is unpredictable.

SHSL-BLOOD-SUGARS

So here goes

December 15th–  I decided to pick a random crazy day, so you can truly see how up and down sugars can be. The day starts with the night of the 14th.

 10:37pm – Blood sugar reading – 6.5mmol/l 

The perfect Blood sugar reading to go to bed with. After a heavy pasta dinner that night, I’m pleasantly surprised. I usually aim for a BS between 6.5 -7 mmol/l  before heading off to bed.  Although 6.5mmol was a great reading, it’s become a habit to always make sure that i’m prepared for any lows in the night. It saves me from having to make that journey down the stairs, or disturbing my husband. Although he say’s,  “he doesn’t mind”. I sometimes feel bad that I’m disturbing his sleep too, but if I really can’t make it I do ask him.

Nighttimehypo

I head off to bed and a few hours later I reach a point in my sleep, where I’m fighting to open my eyes. I’m using every last bit of energy I have to try and get myself up. It isn’t just the feeling of being tired and not wanting to open your eyes. It’s a real struggle, one which means your draining every last bit of energy you have in your body. I tend to have this feeling, when I’m hypoing, but you can never be too sure so I decided to check my blood sugar level.

02.36 am – Reaching for my blood glucose meter I feel very weak. My pj top is soaked. It’s definitely a hypo. Thank god I brought up all those goodies the night before. I check my sugar level and low and behold, I’m having a pretty low low.

Blood sugar reading – 3.4mmol/l

To correct my low blood sugars I usually give myself  15g of fast acting carbs. This usually comes in the form of Lucozade (which by the way isn’t so great in the early hours of the morning).

But this is diabetes, being forced to wake up in the middle of the night to eat or drink something, when all you want to do is sleep. I dare not just go back to sleep!

So, after having my Lucozade I waited 15 minutes, I sat on the edge of my bed in my sweaty pjs. NICE! I watched the time as it ticked by slowly.

The thing about hypo’s are, they can make you feel quite ravenous.  In that momment, you’d do anything to get back to feeling more like your usual self again. Knowing that the food consumed will allow me to return to this normal state, sometimes I am guilty of consuming more than the 15g and waiting for my BS to increase.

Resisting an over correction is one thing but on that night I found I wasn’t able to wait the full 15 mins without checking my BS level again. 7 minutes later, at 2.43 am, when I tested my BS I got a reading of   3.4 mmol/l. Hmmm it hasn’t budged yet!!!

Do I wait till I reach the 15 Mins?

Nope!  I go straight for the apple and satsuma.

02.55 am  – And  yes I’ve  finishedboth fruits in record time. BS reading  is now 4.0 mmol.l. Great finally its starting to come up! I wait a little bit longer and test my BS at 3.30am 5.0 mmols/l. Maybe I was safe to go back to sleep now. At this point I’m feeling even more exhausted than ever.  In a sitting position I rest my head against the headboard and fall into a very deep sleep, until my alarm goes off at 6.30am.

 

07.31 am – BS reading before breakfast 6.0mmol/l

  

The rest of the day went a little something like this….

13.09 BS reading before Lunch

17.10 BS reading before dinner

22.32 BS reading a few hours after dinner.

This was definitely a rebound BS.

*Rebound otherwise known as the Somogyi phenomenon. This sometimes occur when the BS level drops very low and then rebounds very high, causing a high BS level.*

I’m happy to report that after a crazy couple of hours my sugar settled and fell more in the normal range again. PHEW! So just remember, the next time you see me looking all tired, or I make mention of feeling exhausted. It’s possible that I had a crazy night like this one.

Thanks for stopping by  Amina x

The Good, The Bad and the Ugly!

stethoscope

We all know that when it comes to managing our diabetes, how essential it is to have a good doctor or consultant. During my time living with this condition, I can honestly say I’ve had less than a handful of good doctors. By “good” doctor I mean a doctor who will converse with you and not talk at you. A doctor who will give you advice whilst listening to your suggestions because after all you’re the one living with this condition on a daily basis. A doctor who takes your appointment just as seriously as you do and doesn’t make it a joke. A doctor who is just as dedicated as you are in helping you achieve something out of that 20, 30, 40 minute appointment. A doctor who actually cares about you and doesn’t scrutinise every low or high BG reading they see written down.

As a child I had great doctors, who explained everything to me and my parents and made me feel at ease. It wasn’t until I was moved to the adult diabetes clinic (which by the way was very daunting at 18), that I actually started to experience first-hand what dare I say a” bad” doctor was. Ever since I started at the adult diabetes clinic, I’ve had doctors who haven’t taken my appointment time or me very seriously. They were quick to point fingers, didn’t want to hear anything I had to say and personally I think they weren’t right for me or my diabetes.

I dreaded every appointment and would leave the appointment without any new ideas on how to work towards managing my diabetes even further. My time had been wasted and all I had to work with was negative and useless facts. On a positive note, I must say the nurses have always been a very strong support system in the clinic and in most cases they were better than the doctors I’d met.

I was also very fortunate to experience good doctors during my pregnancies, which is a completely different ball game. The doctors during my pregnancy set a very high standard, which made me fearful to return to the doctors I had previously. They were thorough, patient, caring, everything you’d expect from a good doctor. Nevertheless, before I was transferred back to the adult diabetes clinic, I decided to talk to the diabetes consultant. He helped me get through my pregnancies and knew all about my concerns when it came to finding the right doctor. He recommended a new doctor who was due to start at the diabetic clinic, so I went with it. When I finally got to meet this new doctor, I was extremely anxious because I had no idea who I’d get.

“Would it be the good doctor or the bad doctor?”

Well, I’m glad to say that this time I got a great doctor. He introduced himself and then instead of asking me a million and sixty question about my diabetes, I could tell that he had read my files. He’d looked at the notes beforehand and knew exactly where I was up to. Great! No silly questions like,

“When did you become diabetic?”

He did however ask me to present my sugars and my BG meters. He downloaded all the data and I waited for his reaction to some of my low lows and high high’s. I braced myself for a good telling off, but nothing came. He made notes and really studied my BG levels. Then would you believe we had a conversation about where and how we could tighten things up. He didn’t say, “Why was it so low here? “Why was it high there?” or “What did you eat here?” We all know that sometimes we can’t even remember what we ate the night before, let alone that Wednesday night six months ago.

So far so good. I gave him a thumbs up!

We went over everything from blood results, to trying out different setting on my pump, to exercise. We covered everything. What I really liked, is that he set out a goal for the following appointment. We discussed basal testing (this is the background insulin) at certain times where my sugars were a little crazy and to not freak out and over bolus (give myself too much insulin) when I see my BG going too high. I left my appointment feeling like I had achieved something out of the time. It wasn’t time wasted like it used to be. I felt determined. I was going to meet the goals he had set out for me. I was going to do it, not for him but for me!
To be continued…………

________________________________________
I usually have a few questions I ask myself when I’m meeting a new doctor. Will this doctor help me on this difficult road I’m on? Or will he make my journey that much harder?

Here are a few of the things I ask myself:
– Is the doctor empathetic: Does this doctor try to understand what I am feeling and experiencing, physically and emotionally and can he/she communicate that understanding to me?

– Is the doctor forthright: Can this doctor tell me what I need to know so I am able to understand everything clearly?

– How respectful is this doctor: Does the doctor listen and take my comments seriously and works with me?

– Is this doctor caring and patient?

– Is this doctor thorough, conscientious and persistent?

– Does this doctor have substantial diabetes knowledge? For example, current events, CGM sensors, blood glucose meters and pumps etc? Because what’s the point in talking to a doctor who doesn’t even understand how the pump functions?

If you’ve not figured it out yet, having a good diabetes doctor is extremely important when it comes to managing your diabetes. I do believe sometimes you have to experience the bad before you are able to know what is right for you. I hope at least that my post will help you when it comes to finding the right doctor for you.

Thanks for stopping by
Amina xxx

 

Talk about your medicines month

This month of October marks the calendar as “Talk About Your Medicines” month. The American Recall Center invited me to talk about the medicine I use. I hope that this will help to spread further awareness for diabetes.

What’s my medicine?

My Medicine is Insulin. Insulin is a hormone which is produced in the pancreas.
As a type 1 diabetic, I am unable to produce insulin and must administer a synthetic engineered form into my body. It is essential that I inject insulin into my body on a daily basis. I greatly depend on it and it is vital for my survival.

“I am insulin dependent.”

My insulin therapy started over 20 years ago now and it will be with me for the rest of my life. You may or may not have gathered yet but insulin is not a cure for diabetes. As Dr F Banting once said, “Insulin is not a cure for diabetes; it is a treatment. It enables the diabetic to burn sufficient carbohydrates, so that proteins and fats may be added to the diet in sufficient quantities to provide energy for the economic burdens of life.”

Having this chronic disease means that I have no choice but to take this medicine if I want to live a healthy lifestyle. It allows me to live in general. Without it I would be extremely ill and my day to day functions would be limited.

When I was first diagnosed, without my natural insulin production, it took a matter of a week before I became a skeleton. I was weak, constantly consuming what seemed to be gallons of water and daily living became a struggle. The lack of insulin in my body meant that I couldn’t function well. “I was wasting away!”

Starting my insulin therapy impacted me greatly. I had to learn to accept it and trust that this medicine would help me be well again and allow me to be myself again. It was a big change in my life, but remembering the feeling of sickness I had felt before my diagnosis, made me want to be healthy and normal again.

How do you remember to take your medicine?
Remembering to take my medicine can be difficult at times. However after 20 years of living with this condition, there really is no room for forgetting to take your insulin. I’ve made it a priority and it has become a part of my daily routine. Having to calculate carbohydrates I consume forces me to remember to take my insulin. I won’t lie, I have on occasion forgotten to take my insulin. However, I usually remember during my first few bites of a meal and quickly give myself a bolus(dose of insulin). It really isn’t an easy job at all. It’s constant, everyday, night and day. You can’t really escape it or say, “Ok I’ve had enough” or, “oh no! I skipped that dose. Never mind I’ll take another dose tomorrow.” It just doesn’t work like that.

Where do I go for medical support?
For medical support I usually attend a Diabetes clinic. If I have any concerns I tend to reach out to the clinic and also to my GP. I am free to make contact with them during the week. Nevertheless, medical support during the weekend is limited to going to the hospital.

Advice for others
As a newly diagnosed patient about to start a course of insulin therapy. My advice to you is to remember, diabetes and insulin therapy is an enormous and daunting prospect to come to terms with. The concept that you will have to take this medicine for the rest of your life is a lot to contend with. Accepting that this is now your fate, is key to maintaining and managing your diabetes. You must make it your business to learn as much as you can about this condition and its treatment if you want to live a healthy life.
Take it step by step and try to do the basics, e.g. taking your insulin before meals, testing your blood glucose levels and taking note of what your levels are at certain times. Don’t be afraid to ask questions, consult your doctors about the insulin therapy your about to commence. Something that really helped me was to connect with other diabetics both newly diagnosed and diabetics who had been living with the condition for years.

What drug interactions must you be aware of?
When I was first diagnosed I had no idea about different drugs interacting with my insulin. It wasn’t till later in my diabetes life, that I began to understand that there are many drugs which in fact can interact with insulin, drugs such as Aspirin, oral contraceptives, anabolic steroids, thyroid medication and many more. Consulting with your GP is the best thing to do. They will be able to tell you exactly what drugs can interact with the type of insulin you are taking.

The risks and benefits of taking insulin?
The major risks involved in taking insulin are taking too much or too little. This can have a severe effect on your blood glucose levels and can cause hypoglycaemia or hyperglycaemia. Taking the correct dosage is very important.
The benefits of taking my insulin is that I am healthy. Even though I am dependant on it, without it I wouldn’t have been able to achieve many things in my life thus far. Would I be the adult that I am now without it? In all honestly I don’t think I would be the strong, determined individual I am today. This medicine has been instrumental in helping me face my condition. Without my insulin I would not have been around to encounter all of life’s challenges.

What do you wish you knew before taking insulin?
I wish at the time of my diagnosis I knew more about insulin and how it worked. Also I wish I had a better understanding of how soon my insulin/s peaked.

Taking you medicine is crucial when you are a diabetic. However, it is also very important to know more about the medicine you are taking. Don’t take it blindly without knowing more about it and how it will affect you. Being a diabetic is extremely arduous but try to stay positive, be patient, stay determined, reach out to others when you need the support and most of all remember to take your insulin.

Amina xx

Life’s Blessings

So let me start by apologising to my readers for being away from my blog for the past few months. A lot has happened since I last posted but i’m back and I hope to be posting more frequently.

Life is amazing and can take you on so many different paths.  My life took a turn and I was very blessed to have a healthy baby girl

mami susu handSumayah sleeping

As you may or may not know diabetes and pregnancy is not so straight forwards. Diabetes is constant, twenty four seven, seven days a week, three hundred and sixty five days a year and every single second of the day. There’s no break! Now let’s throw pregnancy into the mix. Every worry, stress, discomfort and anxiety I have with just the diabetes alone was trebled. I no longer just had the responsibility of just managing myself and my diabetes. I was now caring for this precious life growing inside me. This gift which was now my responsibility. On top of all of this I also had to make sure my four year old son was cared for and entertained.

Although this was my second pregnancy, it was completely different to my first. In terms of how my sugars behaved, my insulin requirement during the pregnancy etc.  With my first pregnancy I definitely stressed myself out mainly due to blood sugar levels and I found that this time it was no different.  I think it’s a natural feeling to have in the beginning considering how important this journey is.

I’ve learnt to think of it in this way. I have to be able to create the best environment, the best condition for my baby to have the best start in life. Good sugars, good control, being vigilant, being involved in this whole process from the beginning to end and a lot of prays equals a healthy baby. God willing.

I also realised that even though stress is a part and parcel of the pregnancy it is still crucial not to let the stress take over completely. Stress can definitely interfere with sugar levels and I know that all too well. I had to remind myself of this and although still being vigilant I also had to let go of the worry a little and leave it in god’s hands.

beachThanks to my brother for sending me this picture during my pregnancy of his trip to Mexico. It was a great de stress tool. Also long deep breaths and sleep when I could fit it in.

 

I can honestly say that this pregnancy journey was extremely challenging. However the end result makes every emotion I felt, every difficulty I went through worth it. To all the D mums currently on this journey or about to start this journey. Be patient, stay strong and be positive. Try your best and remain stress free.

 

 

Amina xxx

Let’s make it happen together!!!

1.  Push for the best results for you

2.  Stay strong

3.  Be determined to reach and keep within that normal range

4.  Do what you’re supposed to do, ie test sugars levels, eat well, take your insulin, exercise (find something active that you love and can maintain).

5.  Overwhelmed don’t suffer by yourself 

STAY POSITIVE

6.  Remember a down day is normal. Everyone has their down day!

7.”Take responsibility and control of it, before it controls you.”

Get creative with diabetes #3 – This is to the mum’s

PARENTHOOD & DIABETES

 

This is a shout out to us “the diabetic mums”

The mum’s who live each day in constant turmoil with this ever so perplexing condition,

The mum’s who carried you for nine months,

Stressed about their sugars,

Concerned that they may swing too low or too high,

Ever so fearful for their unborn child.

The mum’s who give their all, their love, their support,

The ones who are right there through every blood glucose check fighting for your campaign (The D).

This is to the mum who cried and struggled all night with her sugars, but is always up the following day ready to greet you with a smile.

The worrying mum who worries inside, without a sign she remains positive and strong.

She waits calmly, patiently for that number to appear, ready to take action in an instant.

This is to the mum’s who, persist, stays determined and are very passionate about their D.

They feel no need to hide it or be embarrassed by it.

They share their knowledge, their life and experiences.

They educate one, they educate them all.

This is to the mum’s, who long after they’ve said their good nights and tucked you up in bed,

Come back and linger about you,

Glancing at your pump and inspecting your sugar level, all in hope that their little one is doing well.

This is to the mum’s who still fight for your D even now that you’re gone.

This is to the mum’s, who don’t like to get involved,

Aren’t open to talking about the D

Their expressions says I don’t care or it’s all your fault.

However deep down inside they want nothing more than to see that you’re healthy and well.

This is the mum’s who give priority to other things besides their D.

Neglecting and forgetting themselves, they suffer in silence too afraid to ask for help in fear of what people may say.

And

This is to the dad’s with or without D who’ve loved, feared fought for us and been the bravest of them all.

Amina xx

Answers to test your knowledge

SUGER CUBE WITH GLASSES

1. 1923

2. Leonard Thompson

3. 2007

4. Type 1 diabetes

5. decrease in blood glucose level

6. A lack of insulin, fatty acids being burnt  and the production of ketones

7. 347 million however i think this number may have increased a little.

8.  Happiness

9. 1962 by Leland Clark and Champ Lyons

10.  With diabetes bad days are a part and parcel of the condition. I’ve learnt that I am able to overcome these bad days, sometimes with difficulty and sometimes with ease. Keeping a positive outlook about the condition and having strong support around me has really help me learn how to cope with these difficult moments.No matter what I always find a way to get through it. I won’t let myself be defeated!

Test your Diabetes knowledge!

SUGER CUBE WITH GLASSES

Just a few questions to jog your memory with all things diabetes. See how many you can get!

1. When was insulin first discovered and extracted for the use in diabetic patients?

  • 1880
  • 1923
  • 1946
  • 1825

2. What was the name of the first patient treated with insulin?

  • Thomas Smith
  • Leonard Thompson
  • Jonathan West
  • James Collip

3. Which year was World Diabetes day recognised by the United Nations?

  • 2007
  • 1995
  • 2000
  • 1997

4. I am an autoimmune disease I attack beta cells in the pancreas, not allowing my victim to produce insulin. What type of diabetes am I?

  • Type 1.5
  • Type 2
  • Type 1

5. Hypoglycaemia is a term used to refer to:

  • An increase in blood glucose level
  • A stable blood glucose level
  • A decrease in blood glucose level

6. What is diabetic ketoacidosis (DKA) a result of?

  • Eating too many sugary foods which result in high blood glucose levels
  • A lack of insulin, fatty acids being burnt  and the production of ketones
  • Too much insulin in the body

7. How many people worldwide have Type 2 diabetes?

  • 600 million
  • 347 million
  • 2.5 million
  • 425 million

8. Which of these symptoms is not a symptom of untreated diabetes?

  • Fatigue
  • happiness
  • Frequent urination
  • Thirst

9. When was the first blood glucose meter invented ?

  • 1928
  • 1962
  • 1968
  • 1970

10. Think of one positive thing you’ve learnt from your diabetes and please share those positive thoughts with me.

I will post the answers later today.

Amina xx

The curious Peanut boy

My 3 year has a very inquisitive mind and could absolutely drive you mad with the millions of questions he can come up with. isa scooterHe never wants to hear the straight forwards answer. He always wants the answer with detail. He loves learning about new things and is absolutely obsessed with everything from Space, to Volcano’s and the sea. His favourite subjects of discussion right now are the human body and my diabetes.

I’ve never felt that I have to hide my diabetes from anyone and it has never been a secret to my son either. He is very use to seeing me changing my inserts, playing with my insulin pump, pricking my fingers and he’s even found strips I’ve dropped in some place or another. If I’m guzzling down a sweet drink, he’ll ask me, “Mami is your sugar going low, low, low?” He’s very brave and has come to understand that in situations where my BG is dropping, that I need something sweet. He’ll run to my “special” cupboard of sweet goodies and bring a whole selection of foods and drinks. Of course he’ll wait patiently, smiling his biggest smile, waiting to get his sweet or sip of my drink hahaha! 

I guess right now he’s just taken a strong interest in my diabetes. Instead of just being an observer he wants to get involved and help me with anything diabetes related. He has even asked me a few times to test his blood glucose level and is starting to understand what a good number and bad number is. He’s even asked me if he can insert my insert. On many occasions he’s been with me at my diabetes appointments, taking it all in.

I recently made the decision to teach him how to dial my husband’s number, family members and even the emergency services. Just in case I may need any of them and he is the only one there. Thank god this has never happened and I pray I don’t need him to call anyone in an emergency. Surprisingly enough I ask him from time to time if he remembers and he recalled every instruction and number I gave him. He never ceases to amaze me.

Being a mother with diabetes I feel that it’s very important that my son knows about my condition and doesn’t feel ashamed or afraid of it, but instead that he knows every aspect of it. His recent curiosity and approach to diabetes makes me very proud. He has a great deal of awareness of what diabetes is and how it affects me. Now that he has taken an interest I try my best to include him in what I do on a daily basis. If he has any questions I always give him a good answer. He now knows that although he doesn’t have it the lady in his life (his mami) does. I’ve come to realise that although it affects my life ultimately it also has an effect on his life.

I really hope that other mothers and fathers with diabetes will be able to read my post and not feel that they have to hide their condition from their children. Include your children and don’t feel ashamed to share this aspect of your life with them.

Amina xxx

No strips and expired strips!

As a T1D I know how important it is to have blood glucose strips which aren’t out of date, an expired strip could potentially give me the wrong blood glucose reading. Let’s face it that number that appears on the meter is so important, because as a diabetic I live by the numbers which appear on my meter. It allows me to confirm whether I have a low, high or a good blood glucose level (4-7 mmol/l).  Depending on what the outcome may be I can then act by either treating my low, high or just do nothing but record my level. Knowing my BGL’s are of great importance and it is just as significant as my insulin. My insulin and test strips are pivotal to me being able to manage my diabetes to the best standard possible. Unfortunately I can’t say that I’ve always had an abundant number of strips available or never been faced with expired test strips. I’d be lying if I said that has never happened to me.

That night I realised I used expired blood glucose strips……………..

I was woken one night because I just didn’t feel right. I felt as if my sugar was high. I reached for my blood glucose meter and realised I’d run out of strips. Actually I knew I didn’t have that many strips available the night before and had used the last one before bed. Therefore I checked in my usual back up strip storage places and couldn’t find a thing. My next move is always to go to my other blood glucose meters (x1) and see if there might be any strips in there. Yup I found nothing! So I decided to dig out some old meters (how I did this half asleep I do not know). By the way I have one really ancient meter with no battery and the other was the same as my (One touch Ultra Easy).

I opened up the case for the meter and (bling) I’ve never been so happy to see blood glucose strips and a full tub of 25 strips.  Without even looking at the expiry date I grabbed a strip, pricked my finger and tested my BGL.

HIGH

“WHATTTTTTTTTTTTTT?” OK I felt that way so at least I’m able to recognise my high symptoms.

I don’t know about any of the other T1D’s but the very few times I’ve had a reading that just says high or low on my meter, I totally freak out and want to correct it right then and there! I corrected it with a bolus and then I gave it 30 minutes to see if it would come down. I drank some water because strangely enough that seems to help too. Anyway finger prick number two, I expected the reading to be lower. My meter then produces another reading of

HIGH

“WHAT!! WHY HASN’T IT COME DOWN?”

I actually started to feel a lot better but then silly me instead of trusting how I was feeling.  I then corrected again! I waited another 30 minutes and at this point I started to feel a little low. It just made no sense. I then decided I’d go and wake my husband up who was actually already on his way to me.  I got him to test his BGL which read

HIGH

Side note: My husband isn’t a diabetic so really his BGL should have been within the norm.

I quickly checked the expiry date on the tub and saw that it was out of date by a year {{shock horror}} so all my readings had been incorrect to start with. I couldn’t do anything but at this point I felt as if my BGL was extremely low so I treated it slightly and waited until I felt OK. It was already morning I stayed awake and went to pick up my prescription as soon as the pharmacy opened.

My advice to all the diabetics who use test strips. Please make sure you have sufficient strips and strips which aren’t expired. This experience was extremely scary for me and an experience I’d rather not find myself in again. Having strips and strips that aren’t out of date is so crucial!

Has anyone else ever found themselves without strips or used expired strips without initially knowing? I’d love to hear your experiences.

Thanks Amina  xx

The beeping D ……

As you may know I recently started a sensor trial, which started off really well. I got my sensor fitted everything was running smoothly until I decided I was going to go to the supermarket.

First supermarket trip

The moment, I stepped into the supermarket doors.

BEEP, BEEP, BEEP, BEEP, BEEP! (Anti-theft alarm)

Of course I totally ignored it and kept walking, there were so many people going in and out of the supermarket.

Major Side note: I was coming into the supermarket and in any case it’s not in my nature to shop lift.

I continued with my shopping, arrived at the till, paid for my goods and went through another set of alarms (WHICH WENT OFF).  I looked around because, that surely was not me! So I kept on walking. I reached the exit and walked through the doors with a herd of other people (YES the alarm went off again)! Still oblivious I continued to walk towards the car and go home.

“Wow those alarms were going off a lot. I wonder why?”

My second supermarket trip

Off I go to the supermarket nice and early to pick up a few things.

Side note: I love going to the supermarket nice and early. Its empty and I can just pop in and pop out. Job Done!

I reached the entrance and BEEP, BEEP, BEEP, BEEP!  OK I was the only one walking through, was that me? The guard just nodded and smiled so I smiled back and continued walking in. Shopping done and paid for. I approached the first alarm, BEEP, BEEP, and BEEP! No that was definitely me that time. I decided to turn around and go back to the lady at the till to make sure there were no tags in my bag. The lady checks and finds no tags. She encourages me to just go through. BEEP, BEEP, BEEP! That now confirmed that it was me beeping.

So embarrassing! I had a feeling that perhaps it was something to do with my sensor. I was totally dreading going through the exit alarms so I decide to let the guard know I was wearing a sensor and it might possibly go off as I go through the alarm. I showed him my receipt and my pump just in case he didn’t believe me. Off I went!

BEEP BEEP BEEP BEEEEEEEEEEEEEEEEEEEEEEEEEEEEP!

I continued to use the sensor but I just felt that whenever I tested my BGL it wasn’t even close to the numbers on my pump. After 12 days the sensor totally failed and produced an error message that read ERROR 0.

sensor fail

After 5 hours the sensor remained like this so I decided to call Animas (they are so helpful) and I ended up having a lengthy conversation with them. The lady I spoke to asked me several question and tried to get the sensor running again. However she finally said, that the sensor had failed and that I should remove it all together. When I removed the sensor it was bent and had barely pierced my skin. I also mentioned my beeping every time I went through the supermarket alarm. She said that it’s possible that the transmitter may have been faulty. I gave her the codes on both the sensor and transmitter and I was sent new replacements the following day.

I then restarted my sensor trial and I’m now on day 5, no errors or false readings. My BGLs have been spot on when I cross reference them with my BGL on my BG meter. I’m starting to see a clearer picture of what my BGLs are doing and have been able to make adjustments in my basal rates. It still needs some fine tuning but I feel I’m finally starting to iron out all the lows.

Has this (the beeping) ever happened to anyone else? Or have you ever had a faulty transmitter or sensor in general?

 

Amina xx

What is it about coffee?

Kaffee

© ram69 – Fotolia.com

Coffee  커피  قهوة  café Kaffee コー​​ヒー

Is coffee good or bad for diabetes? Hmmm!! This is a question I‘ve been asking myself ever since my blood glucose levels (BGL) started to wreak havoc.

As a child coffee was always painted in such poor light. It was something I was never allowed to have. I was told it would stunt my growth and that it was really bad for me. All the adults around me were drinking it so why was it such a bad thing? The smell it produced was amazing, it made me curious. “What was it like? Why was it so bad for me?” What made even less sense was that I was allowed to have milky tea, which made me happy because all the adults were drinking it too.

Side note: I also love a good cup of tea. Tea however doesn’t seem to affect me in the same way that coffee does.

As I grew I started to drink coffee, I’d drink one or two cups every week. I loved a good cup of coffee. It didn’t hurt me or affect my diabetes in anyway so I continued to drink it. Since I married my husband (who is a mega coffee drinker), I’ve drastically increased my consumption. My one to two cups every week increased to two to three cups in a day “shaking my head”. But I “love” coffee!!! Recently I began to realise that maybe coffee doesn’t love me back.

Every time I’d drink a cup of coffee I noticed that it increased my BGL with no sign of coming down. Also if I ever ate after consuming a cup of coffee my BGL’s would increase even more, forcing me to correct it with a bolus (insulin correction) to bring it back down.

I decided to do some reading about coffee and its possible effects on type 1 diabetes. A lot of the articles and papers I read were very confusing. Some of the articles would express how beneficial coffee was to diabetes and other articles would point out all the wrongs with coffee and diabetes. I think the reason for this conflicting information is because, coffee contains several types of chemicals and some of these chemicals are beneficial whilst others potentially aren’t. This is due to the fact that caffeine is able to impair insulin sensitivity.  In a person with type 2 diabetes this will increase BGL slightly, however with a type 1 diabetic BGL will increase a great deal and will require a bolus to reduce BGL.

FYI: coffee has many benefits it contains polyphenols which have been known to prevent illnesses such as type 2 diabetes. It also contains many nutrients such as magnesium and chromium. The nutrients have been known to improve insulin sensitivity. (Note to self I better get some magnesium and chromium supplements)

According to 2011 “Breast Cancer Research” studies show that coffee contains numerous phytoestrogens, which are chemicals found in plants that sometimes act like the hormone estrogen in your body. The role that phytoestrogens play in your body varies, however, with some mimicking estrogen and having the same effects as this hormone and others blocking estrogen’s effects. Coffee appears to have both varieties and factors like its preparation method, filtering or boiling may influence how much of each type you take.

After all my reading, I made the decision to give the coffee a break and do a detox (I will do a more detailed post on my detox in the future), to cleanse my system and also to truly find out if it was the coffee that was affecting my blood glucose levels. I actually stayed away from all caffeine during the detox, so no tea as well. During the detox my BGL remained stable (no crazy lows or highs).  After two weeks of detoxing I slowly reintroduce the tea first and my BGL continued to act as it did during the detox.

I then reintroduced the coffee to see what would happen. I decided to only consume 1 cup of coffee every day in the morning. The first 2 days of drinking the coffee caused my BGL to rise beyond belief.  I would always have to correct with a bolus.

Was this the end of my coffee drinking days? L

I did some more reading and found a few articles which mentioned that a regular high caffeine intake has been linked to better insulin sensitivity. I decided although my BGL had been rising, that I would increase my consumption to 2 cups a day.

Day 3, the strangest thing happened. That morning I started my day with my usual routine of BGL check (7.2mmol/l) and my usual cup of coffee. I then checked my BG after an hour and to my surprise my BGL was within the normal range (4mmol/l – 7mmol/l). What did I do differently? Nothing at all!

My BGL continued to stay in the normal range so I had my second cup of coffee that evening.

Then day 5, my BGL started off in the normal range and then they began to drop almost after every meal. I struggled to get them up and it took a lot of glucose/carbohydrate consumption to get it within a normal range.  Day 6 and 7 were pretty much the same. I had to have my emergency hypo kit to hand all the time.

Week 2, I decided I would go back to having my 1 cup of coffee, once a day in the evening. This seemed to slow down the hypos. I guess that everything in moderation saying does work out after all.

Another side track: I then found out I was pregnant and I completely stopped drinking coffee all together. After my little peanut arrived I made the decision to breast feed so I stayed away from coffee for almost a year. Plus the pregnancy and breast feeding brought a whole new set of hypo issues. My insulin sensitivity increased so much that my rates were nearly zero. My I: C (insulin to carb ratios increased) and ISF (Insulin sensitivity factor decreased), but I was still having hypos especially in the night. Naughty me I admit I even detached from my pump at times. As a matter of a fact even after the pregnancy my BGL’s lean towards the lower side. This is something that I’m working on with my diabetic team.

To answer my initial question, is coffee good or bad for diabetes?

I definitely think that coffee has an effect on BGL’s. In my case too much coffee increased my BGLs. After the detox and reintroduction of coffee my BGLs still seemed to rise. An Increased consumption of coffee resulted in a decrease in my BGL’s.  However I feel that the pregnancy may have been playing a big part in it all.

After a few years I’m now back to drinking coffee and I try to limit it to 2 cups in a week or less. I do find that on the days I drink coffee my BGL can drop  especially in the night. This month I’ve been really good and so far only had 4 cups. I don’t think I’ll ever totally give up on coffee but I will definitely moderate the amount of coffee I’m pumping into my body since it seems to have some sort of effect on my BGLs. Overall my nocturnal hypos have decreased.

Does coffee affect anyone else in this strange way or any other strange way? Diabetic or non-diabetic. Or is it just me? Hahaha

 

Avoid retinopathy

Let’s prevent retinopathy

How can we avoid these complications? Here are some of the steps I try my best to take to avoid complications.

1.      BLOOD SUGARS, BLOOD GLUCOSE LEVELS, BLOOD SUGARS. Get them as tight as possible. Stay within the target levels.I can’t stress how important this is. I try to test my BGL at least 8 – 10 times in a day.

Type 1 diabetic (adult) before meals should be aiming for 4-7mmol/l

Two hours after meals try to aim for less than 9mmol/l

Type 1 diabetic (child) before meal should be aiming for 4-8mmol/l

Two hours after meals try to aim for less than 10mmol/l

2.      HbA1c, A1c = Try to get this between 48 – 58mmol/mol (6.50% – 7.50%)

3.  Make sure blood lipids (fats) are in a healthy range.

4.      Get your eyes tested, every 6 months to a year. Let’s avoid any complications occurring.

5.      If you have high blood pressure, get this checked frequently.
125/80 (healthy range)

6.      I always try to eat healthy.

.   Stay Active. Get that blood circulating

8.  I always attend my annual diabetes check ups.

9. Look after your feet

ClearlyHealth

Don’t complicate it! Part 1

DIABETIC COMPLICATIONSAVOID, AVOID, AVOID!!!!!

This is what I think when I see, or hear  diabetic complications.

One of the reasons why I stress the importance of having good blood glucose levels and HbA1c control, is to avoid complications caused by diabetes. These complications can affect the eyes, the nerves, the kidneys, muscles and the heart. This is something which worries me a great deal. However my worries, drive me to want to have  better, tighter control of my blood glucose levels.

Complications are less likely to develop and are not as severe with diabetics who have good blood glucose level control.  If I can put in the effort to have the best control that I can, these complications are less likely to arise.

“Complications with a capital C”

Complication number 1

Retinopathy –  This is one of the complications which totally freaks me out.This complication causes damage to the retina. All diabetics are at risk of developing retinopathy, whether they control their diabetes by diet, tablet or insulin. There is a much greater risk, if your diabetes isn’t controlled well, if you have high blood pressure and if you’ve had your diabetes for a prolonged period of time.

Illustration of hemorrhage in retina - Diabetic Retinopathy

© Sophia Winters – Fotolia.com

Poor control and high blood glucose levels will cause retinopathy to occur. Over a period of time these high blood glucose levels, will affect the small blood vessels in the retina,  causing them to become inflamed and damaged without the patient’s knowledge.

Blood vessels burst causing haemorrhage and swelling. Blood leaks to the back of the eye (in the picture above, this is represented as spots near the vessels) and oxygen is unable to enter the retina. This results in the growth of abnormal blood vessels on the surface of the retina.  Without treatment, retinopathy continues to progress, eventually leading to blindness. Having good blood glucose control and ultimately a good HbA1c, will help to reduce the risks caused by retinopathy.

There are different types of retinopathy

1. Background Retinopathy (or non- proliferative retinopathy)

In this initial stage, many people do not notice any changes in their vision. These early changes are reversible and do not affect vision.  Diabetics must have regular eye checks to prevent these early stages progressing to a more serious stage of retinopathy. If this early stage occurs, it can be detected and monitored closely.

2.  Maculopathy:

Glucose build up in the eye and damages the small blood vessels in the retina. Diabetics can develop a condition called macular edema. Damaged blood vessels leak fluid onto an area of the eye called the ‘macula’. This part of the eye allows you to see fine detail.  With maculopathy the macula becomes swollen and can causes vision to be become blurred.

3. Proliferative:

As retinopathy develops, the retina becomes deprived of a good blood supply, due to damaged blood vessels. This causes blood vessels to proliferate (or grow). Due to a lack of oxygen in the retina and as the eye tries to repair itself.  This causes new brittle blood vessels to grow in the retina. These new blood vessels can bleed and grow rapidly. If this isn’t treated quickly it can cause vision to be clouded, resulting in a damaged retina. In severe cases this can cause retinal detachment, and glaucoma.

There are 3 main treatments used for diabetic retinopathy, which have been effective in decreasing the loss of vision.These treatments include,

To be continued…………………………….

My first hypo!

PrintLet’s face it you can never really be ready for that first “hypo”. “What was to come?” Although I’d read about the symptoms, I could never have imagined the way it would affect me. I wasn’t really prepared for the feelings I was going to experience. The most frightening thing about it all was that I didn’t even realise, that I was already beginning to go through some of these symptoms. In all honesty, I wasn’t sure! I had nothing that I could measure against and confirm that it was a hypo.

This was my first hypo experience!

Initially I felt hungry. But I just thought, “maybe I was just hungry.” Lunch was nearly ready so I waited patiently. I didn’t feel that I needed to alert my mother. “was it a hypo, should I say something?”.  Believe it, or not, my first reaction wasn’t to go and check my BGL. Although you’d think “well why didn’t she just do that?”. But remember I was a child of 11 and this was the first big responsibility I had ever had. A responsibility which I was still familiarising myself  with. I can only put it down to my inexperience and being new to my diabetes.

Unknowingly as my symptoms progressed, I felt and realised, that these were some of the symptoms I’d read about, “Perhaps I was having a hypo”. I remember stumbling over to my mother, feeling very upset, sweating profusely and telling her, “I think I’m having a hypo.” Her reaction was instant. She sat me down, gave me a sweet drink, which I gulped down straight away. She seemed to be moving at the speed of lighting. She tested my BGL, and we both looked down in shock as my blood glucose meter read 2.1.  In my mind I thought, “is that right?”  At the time,  I just knew that this was way below the normal level.

I felt absolutely awful, I was unable to do much for myself. My clothes were soaked from sweating and for the first time in my life I felt so unlike myself. I was confused by what was happening to me and was unable to move as fast as I would like to.  I quickly ate the lunch my mother had prepared. It took a few minutes for the sweet drink and then the food to take effect and for me to feel a little like myself again. Coming out of the hypo my tongue tingled, my hands shook and I was really exhausted. In my mind I thought,

“So this is what a hypo is? I must have been hypo’in for a while!”

It was a scary thing to go through for first time.  I can only imagine what it was like for my mother watching me go through this first hypo.  Even now,  hypo’s can still be very worrying and scary. My first reaction to feeling hungry or dizzy,  is to test my BGL as soon as possible. This allows me to decide whether it’s my BGL or if I’m just hungry. It’s really important to recognise at least one of your symptoms. If you don’t have symptoms, keeping a close eye on your BGL ‘s  is the only way to do it. Teach the people around you,  and make them aware of your symptoms and how they can help you. I can’t stress how vital this is.

How to treat mild and severe hypo’s?

  • The first thing I usually reach for is  a bottle of Lucozade. But any energy drink  or sweet sugary drink is fine. I consume 50mls, which increases my BGL instantly. The great thing about Lucozade, is that it taste great, its easy to consume and they recently started doing more flavours.

lucozade

  • Although my BGL raises instantly, in order to keep it stable I frequently follow up with some form of carbohydrate i.e. a banana, a slice of bread, raisins or dates etc.
  • I’ll  check my BGL at least an hour after my hypo.

I always carry some form of sweet drink with me (usually Lucozade, as they come in a smaller bottle and are perfect for carrying in a bag). I will also keep some gluco tabs or gluco juice handy. GlucoTabs are fast acting chewable dextrose tablets, which contain 4g of glucose and can be used to treat mild hypo’s. They also come in two great flavours (orange and berry). Gluco juice is a caffeine free shot-sized sugar boost that can also help to treat mild or moderate hypo’s. Each bottle contains 60 mls of juice, containing 15g of fast acting carbohydrates.

When hypo symptoms persist and a person is either unable to treat themselves, or they are  unconscious. Glucagon injections are used to treat the severe hypoglycaemia. This is a hormone which helps to increase BGL. When glucagon is injected, it is absorbed into the blood stream. The glucagon moves to the liver and encourages the liver to release glucose into the blood. The effect of glucagon isn’t immediate, it usually takes between 10 -15 minutes to raise BGL’s back to a safe level. I’ve never had to use the glucagon injection, as my hypo’s have never been as severe as this. However I always keep a glucagon injection in the house, for when I might need it.

glycogon

Your views

What was your first hypo experience like? How do you treat yours? If you’re not diabetic, have you ever observed a diabetic during a hypo, or been involved in anyway to help them etc? Because I have no experience using the glucagon, what are your experience’s of using one?

x Amina

Hyper or Hypo!

HYPO vs HYPERAs a Type 1 diabetic, I am all too familiar with high and low blood sugars. It’s a constant struggle to keep levels within a good range. When I think about it, diabetes and controlling BGL is quiet a scary prospect. People without diabetes may not realise the difficulty of managing their sugar levels, because the body does this automatically.

On a daily basis I’m faced with the complexity of managing, my sometimes unpredictable blood glucose levels. I’ve learnt that there are many factors which can impact blood glucose level (BGL) such as, eating too much, or not eating enough, eating on time, how much exercise I’ve done, stress, too little, or too much Insulin. It is extremely important to keep a close eye on what I’m eating, the Insulin I take and most of all my BGL. It all ties together!

What is Hyperglycaemia (Sugar High)?

sugar high

Hyperglycaemia – this occurs when blood glucose levels increase above 11mmol (200mg/dL) and circulate in the blood stream. High BGL’s over a period of years can lead to many type of serious complications. I will touch on these complications in another post.

Symptoms

In the weeks prior to my diagnosis, I began to experience symptoms which were consistent with chronic hyperglycaemia. I will just outline a few of these symptoms.

  • FatigueTiredness which I can’t even begin to explain. If I had to explain this, it would feel like running a marathon, with no water, under the scorching sun and no breaks. Absolutely zapped of energy! Then you’ll probably have a rough idea of the sort of exhaustion I feel.
  • Polydipsia – This is a frequent and uncontrollable thirst. (Hence the need for my huge 2L bottle which was permanently attached to my hip before my diagnosis.
  • Polyuria – Frequent Urination. I was permanently glued to the toilet. It was all day and night. From what I can remember, it was probably between (20- 30 times ) in a day.
  • Dry Mouth – My mouth was always dry. No amount of liquid eased this feeling.
  • Fruity taste – This is a very strong and almost sickly fruity taste, which resembles a really sweet pear. This is a sign of ketone’s.
  • Blurred Vision – My eye sight changed and I needed to wear glasses. Which I then wore for 2 years straight.
  • Weight loss Diabetic Ketoacidosis (DKA), this arises when there is a shortage of Insulin in the body. The body in response to this, lack of insulin adjusts and begins to burn fatty acids whilst producing acidic ketone bodies. My appearance changed rapidly. I’m naturally quiet a tall and slim figure so you can only imagine what I looked like.

What is Hypoglycaemia (Sugar Low)?

PrintHypoglycaemia – A hypo is triggered when blood glucose levels fall under 4 mmol/L or (72mg/dL). This fall occurs when, too much insulin is given or too little food is consumed.

My Hypo symptoms:

Hypo symptoms vary from person to person. Some diabetics have very few to no symptoms at all. My symptoms, and the way they happen have changed throughout the years. The biggest change was during my pregnancy. Its really up to the individual to learn their symptoms so that they can act quickly when they find themselves in this situation. However I’ll give you a general break down of the way my symptoms usually occur.

  • Initially I may feel hungry or dizzy – this hunger feeling is an urge to eat something quickly, for me it’s usually something sweet.
  • This is then followed by a change in my mood. Which can range from feeling irritated, angry, and I have even found myself getting upset over the smallest of things. At that moment in time, everything is blown out of proportion. I really believe that emotions, such as anger which may not be in a person’s characteristics may be brought to the surface, or exaggerated because the person is in a hypo state.
  • Change in temperature – Usually I will feel extremely hot. ”Over heated!” Almost like I’ve been made to stand in a sauna for hours. At this point I break out in a sweat.

If my symptoms progress:

  • “The shakes”. I am unable to stop my hands from shaking, followed by a tingling feeling on my tongue.
  • Concentrating on one thing at a time can feel really confusing. I develop the ”one track mind” and I tend to fixate on what is being said, with a need to defend myself, even if it isn’t directed at me.This quickly turns into silence, as I feel myself crashing. Unable to speak, and move, trying to preserve the last bit of energy I have left.
  • ZERO energy – to the point of collapsing.
  • In extreme cases diabetics are known to go into ‘diabetic coma’s’ and even have seizures . I have never experienced this and pray that I never do.

PrintOccasionally I’ve had hypo’s during the night. This is known as ”nocturnal hypoglycaemia”. I usually wake up in a confused state, feeling absolutely exhausted, with a piercing headache, damp clothing and sheets due to sweating.

Dealing with these symptoms can definitely be frustrating and testing at times. The huge responsibility, that comes with accepting my condition, whilst trying to manage it to the best of my ability is terrifying. I can’t say that any one symptom is more severe than the other, as the feeling of each one is severe in itself. As the hypo progresses the earlier symptoms are enhanced. Finding the right balance between food, exercise, and insulin will give you the best of BGL’s on one day. Then on another day this perfect balance becomes irrelevant, causing BGL’s to be disrupted. It really is a daily battle, one which can make other things seem so trivial. As hard as it can be,  I try to remember this,

“my rules of encouragement”

  1. ‘Push’ for the best results for you
  2. Try to stay strong
  3. Be determined to reach and keep within that normal range
  4. Do what you’re supposed to do, ie test sugars levels, eat well, take your insulin, exercise (find something active that you love and can maintain).
  5. ‘Overwhelmed’ don’t suffer by yourself 
  6. Stay positive
  7. Remember a down day is normal. Everyone has their down day!

“Take responsibility and control of it, before it controls you.”

I’d love to see your perspective in the comments! What symptom’s do you have? How do they progress? Have they remained the same throughout your time with diabetes? Any Type II diabetics have you experienced any symptoms? If you’re not diabetic, have you ever experienced being with or around someone who has suffered a hypo/hyper? Are you able to recognise that the person is experiencing a hypo/hyper? Maybe by a change in their mood, expression, or the way they are talking etc?

Test your sugar girl!

Blood glucose  levels = diabetes management

BE HEALTHY KNOW YOUR BGLA major aspect of being able to manage my diabetes is to regularly test my blood glucose levels. This involves inserting a test strip into a blood glucose machine, pricking my finger to draw blood and applying my blood to a test strip.

Testing blood glucose levels (BGL)  is a way for a diabetic to gauge what sort of  levels they are working with. For someone without diabetes this isn’t necessary,  as the body is able to keep the levels in a healthy range automatically. The body produces insulin and allows glucose to be released as energy.

What are the healthy ranges you ask?

In order for me to explain the levels a bit better. Please refer to my table below.

 Type Before Meal  2 hours After Meal
Non diabetic 4.0 – 5.9mmol/L Under 7.8 mmol/L
Type 1 4.0  -7.0mmol/L Under 9.0 mmol/L
Type 2 4.0 – 7.0mmol/L Under 8.5 mmol/L

For a person without diabetes, a normal blood glucose level usually ranges between 4.0mmol/l (72mg/dL)  – 6.1mmol/L (110mg/dL). After a meal, blood glucose levels may increase for a short period of time up to 7.8mmol/L (140mg/dL). With Type 1 diabetes there is the risk of blood glucose levels either raising (Hyperglycemia– this is when an excessive amount of glucose circulates in the blood) or dropping (Hypoglycemia – this is a  diminished amount of glucose in the blood.)

After years of testing, it’s something that you don’t really get use to. For me, it became something that I had to do, even though at times it can be painful, it can leave marks and has hardened my finger tips. The harsh reality is,  that it is a crucial part of being able to manage your diabetes.

How I manage my blood glucose levels

From the very beginning (at the age of 11), I tried as much as I could to take and record my BGL by myself. This was something which was encouraged during my time in the hospital and also at the diabetic clinic. However my parents supported me with this, but never pressured me. I felt comfortable to check my BGL and even inject in front of them and my siblings. They continued to except me for me, and never made me feel any different to them regardless of my condition.

Throughout my 19 years as a diabetic, I’ve gone through my fair share of blood glucose machines. There is such a wide variety of blood glucose machines out there. Most blood glucose machines work in the same way. In the sense that you get a blood sample and a blood glucose result in the end.My first blood glucose machine was big and bulky, required a large sample of blood and  took much longer to produce a blood glucose reading. I was advised by my diabetes team to test my glucose before and 2 hours after my main meals. My blood glucose levels (BGL) would then be recorded in a log book like this.

log book 3

The log book  allowed me to make notes of my insulin doses for that day, week etc. Also any general notes I wanted to jot down could be written in there. Now that I use an insulin pump my log books have changed and I tend to test a lot more frequently.

LOG BOOK

My blood glucose machines now are a lot more advanced and allow me to study the data a lot more closely. I enjoy formulating patterns and occurrences in blood glucose levels etc. (I think this is just the scientist in me). However, it does help me make changes or suggestions to my diabetic healthcare team during appointments.

The right machine

Here are the machines I’m using at the moment.

BGL MACHINE1

It’s always good to have a backup machine. Choosing the right machine is extremely important, because essentially it will allow you to know what is happening with your BGL and help  you to keep within a healthy range.  Personally, I prefer something that is small, easy to carry and requires a small blood sample.

Some insulin pumps, like the (Animas vibe) have the capability to continuously monitor blood glucose levels. These continuous CGM (Continuous Glucose Monitoring) glucose sensors are connected to the body and work with the insulin pump to retrieve blood glucose results. With the BGL’s retrieved, the CGM is able to formulate graphs. This comes in handy when it isn’t possible to test i.e. during the night, early morning, during a workout etc. The CGM is able to alert the user when blood glucose levels are increasing or decreasing. I hope to get my CGM sensor soon and will definitely share my experiences using one.