I want to introduce Ashley, an Australian based blogger at www.bittersweetdiagnosis.com. She is an accredited dietitian and is currently studying her PhD in the field of diabetes education in young adults.
Ashley also has an active role at the International Diabetes Federation as the President-Elect of the Young Leader in Diabetes Programme.
I’ve known Ashley since I first began Sugar High Sugar Low and we have been good diabetes buddies ever since.
Who is Ashley?
When I’m not working away, you’ll find me trying out new place to eat with my boyfriend. , I hit the gym fairly regularly as it helps me to de-stress too. I also play clarinet in two concert bands, which gives my brain a bit of a break. If I’m not doing any of those, I’d be having a snuggle with my gorgeous fur baby – Rosie the cat.
I was diagnosed with diabetes by chance. I had a stubborn sinus infection that wouldn’t go away. I had blood tests done and an oral glucose tolerance test.
Oral glucose tolerance test – measures the bodies ability to use glucose
Within one hour, my blood glucose was 22mmol/l and I felt quite ill! I was diagnosed with type 2 diabetes. Being quite young (19 years old at the time) and relatively active, my family doctor/GP wasn’t satisfied with the diagnosis and sent me to an endocrinologist for a second opinion. I had an antibody and genetic testing which both came back negative for type 1. However, my pancreas was failing to produce the normal level of insulin so now I’ve been classified as having type 1b diabetes.
However, I recently had genetic testing done for MODY and am yet to find out the results. Although, I’ve been told I don’t fit any of the common MODY strands they have already identified.
How do you stay motivated whilst living with diabetes?
I don’t know to be honest! I think it’s definitely wanting to live a long and healthy life and reducing the risk of complications. But It would be hard to do the things I love if I didn’t feel like my diabetes management is adequate.
A way I get back into my diabetes management if I feel like I’m going off track is to get a new diabetes ‘toy’. Recently, it’s been about trying a new CGM sensor. Sadly, this is something I won’t be able to afford on a long term basis. So I’ll go back to buying new PumpPeelz for my pump and meter or a new diabetes carry bag etc. Anything to keep it fun.
Bittersweet Diagnosis blog
I love to write. I first started Bittersweet Diagnosis as a personal blog about life, thoughts and feelings. But once I started writing about diabetes, I remember thinking that I should focus my blog on my experiences on living with diabetes. Initially, I mainly wrote to share with my family and friends what living with diabetes is like. Now, I’m honoured that it gets shared around the world.
There are times where I feel pressured to write a good blog post. During these instances I need to remind myself why I started writing in the first place. My friends are also very encouraging and I often hear about how my blogs have helped others develop an insight into how complicated and complex life with diabetes is.
Ashley the dietician
As a dietitian, I work with clients to develop strategies towards their goals and develop a healthy relationship with food. People like to think dietitians are the food police,
but we are much more. I help people develop a better understanding of how foods affect them, how to achieve balance in their food habits and to remind them that food is more than just calories and nutrients.
For the moment, I’ve given up on seeing patients as my current workload with my PhD and the IDF YLD is enough to keep me on my toes. But one day, I would like to set up an online practice where I will consult with people over Skype to minimise travel and the inconvenience for clients.
Advice to new patients…
It’s okay to feel like crap. It’s okay to have a cry or to be angry. My biggest advice for people who have been newly diagnosed with diabetes is not to panic. You can still live a normal, full and exciting life. Be prepared for the biggest learning curve you’ll ever experience. Remember that there is no one size fits all. It will take time to find what works for you. Diet wise, I would say to keep calm and remember you can still eat anything, but with slight adjustments here and there.
Remember that no one is perfect. While we strive to always be in the ‘green zone’ the odd day or time outside of this zone is okay. It’s frustrating and annoying to deal with but just deal with it the best you can.
Remember too, that you are never alone. There are so many people in the diabetes online community willing to give you a helping hand. All you have to do is ask.
What sorts of food do you encourage your clients to have in their diet?
Eat the foods they enjoy eating! Even if that is desserts, we will work through strategies around mindful eating to ensure we don’t over eat and we are listening to our bodies. Absolutely healthiest foods are a little bit of everything really. But if I had to choose a food group, I’d go with vegetables.
What does Ashley eat?
Ooh!!!! I just had my lunch and should’ve taken a photo because it was delicious! I had leftover home-made butter chicken with rice and veggies. My mum is a fantastic cook and she cooks extra so I get to bring leftovers to work/uni. Over the years I have lowered my carb portion by at least half and included more vegetables and dairy foods.
A typical day this week may look like this:
Breakfast – A slice of wholegrain bread with peanut butter and honey (~25g CHO)
Snack time – A tub of yoghurt (180-200g) (~20-30g CHO)
Lunch – Leftover dinner – often some sort of carb (about half a cup to a cup cooked) with vegetables and meat/fish (~50g CHO)
After Lunch – a small packet of crackers or popcorn (~15g CHO)
Dinner – Some sort of carb with lots of veggies and meat/fish (I’d eat out maybe twice a week and have a chicken Parma or a burger or something) (~60g CHO)
I drink at least 1-1.5L of water a day with many cups of tea in between! I also don’t really like fruit. But once in a while I might have an apple or some berries or something.
How do you deal with unfamiliar foods?
SWAG it! I’d like to think that as long as you have a good basic understanding of what a carb food is, you can generally estimate portions to some degree. I find Asian food to be the most challenging, particularly with the sauces that they use. When I’m feeling nerdy (not very often) I might google the dish and a recipe to get a better understanding of the ingredients used.
Young Leader in Diabetes
The YLD is a programme of the International Diabetes Federation. We serve to be a voice for all young people living with diabetes around the world. We advocate to improve the lives of people living with diabetes against issues like lack of access to medication and care, discrimination and lack of awareness around diabetes.
I’m currently the President-Elect of the IDF Young Leader in Diabetes (YLD) Programme. As part of my role, I work with the executive council of the YLD to ensure that all our Young Leaders are receiving adequate support for running and managing their diabetes project. The YLD will also work on global project such as on World Health Day or World Diabetes Day to raise awareness for diabetes and keep advocating for causes we support. In the background, the executive council works really hard to ensure that the YLD continues its survival as a sustainable program and planning for the next leadership training program.
Thank you Ashley for sharing all the important roles you play within the diabetes community, you’re a true inspiration to us all. Keep up the fantastic work.
Article Ashley is featured in : New device for diabetes eliminates the need for painful finger pricking