Tag: Endocrine Disorders

MIA, Diabetes and life

Hi guys

It’s been a while since I last wrote a post. I’ve totally been MIA lately due to a lot of different things happening in my life at the moment, some things are D related and others are just the usual day to day life occurrences.  Anyway maybe we’ll get into that at another time.

In terms of my D,  one of the things I’ve been trying my best to do is to get a much tighter grip on my blood glucose (BG) levels and in turn my HbA1c. I’m pleased to say that I was able to take my HbA1c down from 7.5% to 6.4% YAY!!

As a diabetic, I know all too well that when it comes to diabetes it doesn’t affect all diabetics in the same way.  By this I mean, we can’t all use the same basal rates, count and eat the same carbohydrates and even take the same insulin doses in order for our diabetes to be well controlled. Unfortunately,  it’s a lot more complex than that.  I’ve found that with my diabetes and getting things to work it is all determined by trial and error.

What is this you ask?

I think most diabetics and even the professionals (who help us diabetics with our blood glucose (BG) levels and insulin calculations) all use this method. This method works by basically trying something out to see if it works. If it works I stick to it, if it doesn’t then I shift numbers, tweak ratios and rates etc. 

So what have I been doing to keep my dreaded and sometimes tedious BG levels under control?  Here are a few things I’ve been doing:

Exercise:

I really do believe that exercise is necessary when it comes to managing my diabetes. I usually work out at least 4 to 5 times in a week, however when I first started working out I started with a realistic and manageable goal of 2 days a week for at least half an hour at a time. I started with a little Zumba and one of my favourite Youtubers Cassey Ho.  I found that I started to enjoy it and besides it giving me a great deal of energy it also helped with my overall BG control. Initially my BG level dropped quiet frequently and I had to make sure I consumed more carbs to maintain a good level.  However my insulin requirement started to decrease across the day and I found in general I just needed to reduce my basal rates, increase my insulin to carb ratios and give myself a smaller bolus after meals. During my whole working out transition I had to use the trial and error method and a lot of consultations with my diabetic doctor to see what would work best with my BG.

Coconut water: I started to drink coconut water after I found that caffeine in general wasn’t a good option for me and my BG levels.  You can read about my experiences with caffeine and coffee in particular (here). Once I started drinking coconut water my cravings for coffee seemed to reduce a great deal. I started to find that every time I drank coconut water my energy levels were boosted. The days I didn’t have any I noticed I definitely had less energy than normal.

There are so many benefits to drinking coconut water. Here are a few of those benefits:

– It hydrates the body even better than water

– It is rich in dietary fibre, enzymes, vitamin C, minerals such as magnesium, potassium and amino acids.

– It is also very low in calories and cholesterol

– It speeds up the metabolism

– A weird thing I found out about coconut water is: If you wanted to bathe in coconut water it would be really great for your skin (hahaha never tried that one)

-It also boosts the immune system, which is a bonus for us D’s as our immune systems are generally a lot weaker. Actually since I started drinking it I haven’t had a cold.

-Because it’s a natural product it’s safe to drink during pregnancy and breastfeeding and is also safe for younger children.

Matcha Tea:  I’ve been drinking Matcha tea now for a few years. Matcha is a finely grinded green powder made from green tea and is used in Japanese tea ceremonies. It’s highly nutritional and has very high antioxidant content.  I love Matcha and in relation to my diabetes I usually try to drink it at least 3 times a week. When, I’m having a day where my BG levels are constantly dropping or if they remain higher than I’d like. It seems to stabilise my levels and usually it gets it back into a normal range.

Low carb diet: Eating a lower carb diet has really helped me manage my BGs better. I still consume carbs but I try not to have more than 300g of carbs a day.  I’ve found my BG levels are much more stable and easier to control.

Dairy: I recently discovered dairy and I aren’t the best of friends. Unfortunately I have become lactose intolerant. I noticed that whenever I consumed any dairy products, I would see a spike in my BGs. After I stopped consuming products with dairy  in it, I stopped having these spikes in my BG levels and also my digestion seems to be working a lot better.

Eating right for your blood type: I’ll have to write a separate post just on this, to explain what this is all about. In the meantime there is a book by Dr Peter J.D’Adamo which goes into detail called “Eat right for your type”.  He has also written a book based on diabetes called “Diabetes and fighting it with the blood type diet”.

De-stressing: I really do believe this is also a major factor when it comes to BG levels. Any stress these days seems to have an effect on my BG levels.  I try to take myself away from the daily stresses of life and make time for just me.  Selfish you might say but it makes for a better Amina, mummy and wife. Plus my BG levels really seem to like the little time I give back to myself. (I’d definitely suggest doing this)

Finger pricks: Finally I’ve been testing my BG levels a lot more frequently on a daily basis. I now try to test at least 8-10 times a day, sometimes more which gives a really accurate picture of what is happening with my BG levels. I was using the Dexcom sensor which I found was really beneficial when it came to my BG levels. However it was only for a short period of time and after using it I hope that it will be something that I can fund and use in the future.

I really feel that all these things put together have contributed to getting my BG levels and HbA1c in better control. However these things seem to work for me, it may not be the same for you. I also had to consult my doctor and nurses frequently when trying out these options. I’m always willing to try new things if it means tightening my BG control. I’d love to hear of anything which you’ve found helps you in your overall diabetes control.

Thanks for stopping by

Amina xx

D related disappointment!

On Saturday, I had a routine eye check at the Eye hospital. As a type 1 diabetic having regular eye tests and making sure your eyes are in tip top shape is the best way to Printavoid any complications which might occur.

Side note: I never miss an appointment I usually have my eyes checked every 6 months to a year with the optician. Then every year since I had my son I usually attend the eye hospital for a routine check-up.

So I made my way to my appointment, the doctor checked my eyes thoroughly and proceeded to tell me that I have “*small changes” in my eyes.

WHAT?? was my initial response ( in my head ) I wanted to shout it at the top of my voice, but me being me I remained calm and maintained my compose. I mean how could this even be happening? My HbA1c is good, well 7.5 is good right? I suppose I can definitely get it tighter and I’m all over my blood sugars day and night. What more could I be doing?

He then proceeded to tell me that it was nothing to worry about and that the changes were too small to be a concern.

“Oh is that supposed to make me feel better!” Well it didn’t!

For me any change is a bad one, especially when those changes are occurring in my eyes. Well this shocking news pretty much set the tone for the rest of the day. I felt disappointed in myself that this was the result I was hearing.

Side note: I’ve had small changes before just after I had my son, but they corrected themselves plus my HbA1c was at 6.4, so I’m hoping and praying that this time they will correct themselves one again.

Being able to connect and talk to others type 1 diabetics (T1D) is something I feel that has been lacking throughout my 19 years with diabetes. I can only say I know less than a handful of other T1D’s in my town, which is really sad.

My family have always been great with trying to understand my diabetes and make me feel better when I’m having a bad D moment. However I sometimes feel that they could never really fully understand it.  I love them very much and will always appreciate all the advice and the help they can give me.

Recently twitter has become a place where I can go to and vent about D related issues and non D issues too. It has helped me immensely and I’ve been able to connect with so many other T1D who are going through similar things to me. They just get it and can relate to the highs and lows that diabetes brings.

Yes I’m worried, I’d be lying if I said I wasn’t, but  I have to stay positive. I’ve had some great advice from my family and other T1D which I’m planning to implement. I know that these changes aren’t my fault and that I’ve been diabetic now for a very long time. The most important thing is that I continue to try my best and maintain as good a BGL as possible.

My Plan of action

  • Keep on checking my BGL throughout the day. I recently started using an app called mySugr (https://twitter.com/mysugr) and it has really helped me keep a closer eye on my blood glucose levels. It has some great features and I can take it with me wherever I go. Also I had the opportunity to use a CGM sensor recently and I’m hoping to get one on a more permanent basis. I believe it will help me a great deal.
  • Hopefully getting a tighter grip on my BGL will also reduce my HbA1c. I’m aiming to get it down to 7 and then after that I’ll try to get it back in the 6’s again.
  • Some great advice I got from https://twitter.com/nrycroft was when I count the carbs I eat, I should try to calculate how much insulin I need based on my experience with that carb rather than depending solely on what the text books might say. If I’m able to generate almost like a map of the portions of carbs I eat, using the trial and error method I will hopefully be able to figure out how much insulin I’ll need to take every time I eat that carb.
  • Continue to work out. Working out definitely helps my BGL.
  • Try to connect with more T1D in my town.
  • Stay positive

If anyone else has any other advice I would really appreciate it.

Thanks for stopping by Amina xx

 

*Please refer to my previous post: https://sugarhighsugarlow.com/2013/04/24/diabetic-complications/

*Small changes or background – This is the most common type of diabetic retinopathy and many people who have had diabetes for some time will have this early type. The blood vessels in the retina are only very mildly affected, they may bulge slightly (microaneurysm) and may leak blood (haemorrhages) or fluid (exudates). As long as the macula is not affected, vision is normal and you will not be aware that anything is wrong. Your retinal screening test will keep a close check on these early changes and ensure that any signs of progression to more serious stages of retinopathy are detected early.

Get creative with Diabetes

Since, I didn’t get a chance to join in on the Diabetes blog week. I wanted to post this creative piece, which I had already prepared a while ago.

The moment I realised,

I RUN ON INSULIN

The Bond

Where would I be, without my insulin pump?

My constant supply, my night and day.

My everything, my all, the strength by my side.

My companion and I, we struggle, we stride, yet we continue to survive.

You who I can depend on, I will defend you, always on your side.

You endure, my highs, my lows, with no word, no sighs.

You are forever committed to me, for as long as I stay devoted to you.

What would life be, without your endless support?

Every day a new challenge, we fight, we fall, yet we’re still standing tall.

Oh How I envy you sometimes, looking all so poised and refine.

Memory takes me back, to when me and mine would work just fine.

Connected we will stay, till the end of my days

Me and my insulin pump.

By Sugar High Sugar Low

 

Work your sites

© Dmitry Lobanov - Fotolia.com

© Dmitry Lobanov – Fotolia.com

By sites I mean, injection and insulin pump sites. The site, where a needle must pierce the skin to allow insulin to be delivered into the body. As a type 1 diabetic, this is something which can’t be avoided. Whether you’re using an insulin pump or injecting, it’s really important that you rotate the sites you use.

“ROTATION IS KEY “

After many years of injecting, and now using an insulin pump. I must admit at times I do get comfortable with using certain sites on my body. It’s very easy to slip into the “bad” habit of using the same sites over and over.

Print“It gets comfortable! It’s easy to manage. It doesn’t hurt. If I try a new spot will it bleed? Will I have to redo it? Let’s just stick with the thigh today.”

No rotation = lumpy bumpy body

Over use of sites will stimulate the development of lumps. These lumps often seem soft and grape like at the site of injection. The proper term for these lumps are,

Fat hypertrophy also known as hypertrophy or insulin hypertrophy.

These lumps are a build up of extra fat deposits, due to the site being used too often. The Insulin injected isn’t able to flow around the body freely. The way insulin is absorbed is changed, and is unable to circulate as it should do. Therefore making it more difficult to keep blood glucose levels on target.

So what sites can we use?

Here are a few of the sites which can be used when attaching an insulin pump or when injecting with injections. Also refer to the picture below.

  • Stomach
  • Bottom
  • Waist area (love handles)
  • Thighs
  • Backs of upper arms

sites

When I use to inject 5 times a day, the frequency of lumps and bumps occurring were very common. I changed the size of my needles to the (novoFine 0.3 x 8mm needles) to help to prevent these lumps. Even though I was “rotating my sites”, and I now had “these finer smaller needles” I would still develop small bumps under the skin. I found that exercise helped to get rid of these lumps.

Now that I’m using an insulin pump the occurrence of lumps and bumps are far fewer. I try not to leave my insert on a site for more than 3 days ( *this also happens to be the maximum recommended time by the *CDC). After this point, I find that my skin does become raised and bumpy.

Site Rotation tips

“Monitor those blood glucose levels (BGL’s), because literally your life depends on it.”

As time goes by you will start to realise which sites are better for the best BGL control. Talk with your diabetes team and see if their suggestions are good for you.

  • Avoid injecting or placing your pump near your belly button, or near any moles or scars. Tissue in these area are usually a lot harder. Therefore insulin absorption will be a lot slower.
  • Try to use your outer upper arm, this part is a lot fattier. Placing an insert or injecting in this site is difficult, so when I put on an insert I press my arm against a wall to attach it.
  • Thighs – avoid inner thighs, because it could be more painful!
  • Change insert every 2 -3 days and change needles after every use!
  • Make sure the area you are going to inject or attach your pump to is clean.
  • Don’t get comfortable. Don’t use the same sites. Work that body! Avoid those unsightly lumps and bumps
  • Get your sweat on. Try to find an activity that you can maintain and most of all enjoy!

Which are my best sites you ask?

Well, the best sites for me have changed throughout the years. I try my best to avoid my thighs and stomach area (when I was on injections these were my favourite sites). By frequently injecting in those site it has left me with a few small lumps, but being active has helped to reduce and even get rid of the lumps. At the moment, I’ve found that the upper backs of my arms and my derrière region are great for the best blood glucose levels and my overall control. I have no idea why this is. It’s just right for me right now. Everyone’s best sites are different. It’s up to you to figure out which site is best for insulin absorption.

“Remember to rotate your sites, avoid those lumps and bumps on your skin, and find the best sites for you to be able to achieve the best blood glucose levels.”

Changing the “insert” before it needs to be changed

insert 1-This pictures to the right is a insert from different angles. The Picture towards the bottom is the piece that is inserted into my skin. The tubing is connected to my insulin pump.

There are times, when I attach my insert and it just won’t stay put, It doesn’t feel comfortable or it is stuck to me like glue. These all result in me having to change the site. These are a few examples of when I may have to change my insert.

  • Accidentally rubbing my hand over my insert and detaching it. I need to replace it.
  • Creaming my hands and skin and I start to feel my insert peeling.
  • As I attach the insert I get a sharp pain, followed by blood coming through the tubing of my pump. I need to replace it.
  • In the middle of the night, my pump has a fit, because there is an occlusion in the tubing.
  • Time to replace my insert and it just won’t come away from the site. AHHH!

Have you ever had lumps and bumps? Which sites are best for you? Do you get comfortable with certain sites? What do you do to stay active and get rid of those lumps?

*CDC – Centers of Disease Control

 

Don’t complicate it! Part 1

DIABETIC COMPLICATIONSAVOID, AVOID, AVOID!!!!!

This is what I think when I see, or hear  diabetic complications.

One of the reasons why I stress the importance of having good blood glucose levels and HbA1c control, is to avoid complications caused by diabetes. These complications can affect the eyes, the nerves, the kidneys, muscles and the heart. This is something which worries me a great deal. However my worries, drive me to want to have  better, tighter control of my blood glucose levels.

Complications are less likely to develop and are not as severe with diabetics who have good blood glucose level control.  If I can put in the effort to have the best control that I can, these complications are less likely to arise.

“Complications with a capital C”

Complication number 1

Retinopathy –  This is one of the complications which totally freaks me out.This complication causes damage to the retina. All diabetics are at risk of developing retinopathy, whether they control their diabetes by diet, tablet or insulin. There is a much greater risk, if your diabetes isn’t controlled well, if you have high blood pressure and if you’ve had your diabetes for a prolonged period of time.

Illustration of hemorrhage in retina - Diabetic Retinopathy

© Sophia Winters – Fotolia.com

Poor control and high blood glucose levels will cause retinopathy to occur. Over a period of time these high blood glucose levels, will affect the small blood vessels in the retina,  causing them to become inflamed and damaged without the patient’s knowledge.

Blood vessels burst causing haemorrhage and swelling. Blood leaks to the back of the eye (in the picture above, this is represented as spots near the vessels) and oxygen is unable to enter the retina. This results in the growth of abnormal blood vessels on the surface of the retina.  Without treatment, retinopathy continues to progress, eventually leading to blindness. Having good blood glucose control and ultimately a good HbA1c, will help to reduce the risks caused by retinopathy.

There are different types of retinopathy

1. Background Retinopathy (or non- proliferative retinopathy)

In this initial stage, many people do not notice any changes in their vision. These early changes are reversible and do not affect vision.  Diabetics must have regular eye checks to prevent these early stages progressing to a more serious stage of retinopathy. If this early stage occurs, it can be detected and monitored closely.

2.  Maculopathy:

Glucose build up in the eye and damages the small blood vessels in the retina. Diabetics can develop a condition called macular edema. Damaged blood vessels leak fluid onto an area of the eye called the ‘macula’. This part of the eye allows you to see fine detail.  With maculopathy the macula becomes swollen and can causes vision to be become blurred.

3. Proliferative:

As retinopathy develops, the retina becomes deprived of a good blood supply, due to damaged blood vessels. This causes blood vessels to proliferate (or grow). Due to a lack of oxygen in the retina and as the eye tries to repair itself.  This causes new brittle blood vessels to grow in the retina. These new blood vessels can bleed and grow rapidly. If this isn’t treated quickly it can cause vision to be clouded, resulting in a damaged retina. In severe cases this can cause retinal detachment, and glaucoma.

There are 3 main treatments used for diabetic retinopathy, which have been effective in decreasing the loss of vision.These treatments include,

To be continued…………………………….

What is Type 1 Diabetes?

What is Type 1 Diabetes?

Type 1 diabetes occurs due to a lack of the hormone Insulin in the body (Insulin is  produced in the pancreas). When food is ingested this lack of Insulin causes blood glucose levels to rise as the glucose builds up in the blood stream.

©Clearly Health

TAKE CONTROL OF YOUR DIABETESBeing diagnosed with type 1 diabetes meant that I had to accept the dreadful truth that I now had this for the rest of my life and that I was now Insulin dependent.

There are two options for Insulin treatment. Either by injection or Insulin pump therapy. When I first became diabetic I only had the option of injecting therefore  I started my insulin treatment with injections, injecting twice a day. But as I grew,  my body required a lot more insulin. So my twice a day dose was then increased to five times a day. I asked myself, ‘How was I going to do five injections a day?’ I had only just got the hang of having to inject twice a day Print

pensAs difficult as I thought it was going to be, I remained calm and positive about the new situation I found myself in. I said to myself, ‘Amina you have no choice. It’s either you take control of this condition by taking five injections a day or succumb to it and let it control you.’ Despite my apprehensions,  I  remained on five injections a day for many years. As doubts crept into my mind again,  I remember thinking I was going to be taking five injections a day  forever (which seemed like a long time). During August 2009,   I was contacted by my diabetic healthcare team to tell me that my insulin pump had arrived. It couldn’t have come sooner! Print

pump

My Diabetes……

How it all started

At the age of 11, I was diagnosed with Type 1 diabetes. The symptoms were very subtle to start with. Sheer exhaustion was the first to hit me. My mother began to question ”why was I always tired?” I went to the doctors and was told I was anaemic and needed iron tablets. I took them but still the tiredness continued. A few weeks later, the symptoms came on rapidly over a course of a week. I was constantly exhausted, carrying 2Litre bottles of water around with me unable to quench my never ending thirst. Waking up several times during the night became routine and not to mention the drastic weight loss which occurred over that week. I was a walking skeleton!!

Diabetes is a common trait with the women in my family which made both me and my mother more aware of some of the symptoms at the time. Knowing some of these symptoms are really important as it can affect anyone of us and it may make a difference in saving someone’s life. But to this day, I still believe that the little knowledge and experience we had helped us take action which helped me get the treatment that I needed.

My diagnosis at such a young age was a great shock and difficult to understand at first. I knew that I had to accept and deal with it if I wanted to be healthy. I can honestly say that I’ve had a great support network from my family, friends and some of the nurses and doctors. On the other hand, even with their support I’ve still had my ups and downs and ultimately I’ve realised that it’s my diabetes and my responsibility. I’ve learnt that my condition is something that I shouldn’t hide from or be ashamed of, but something that is a part of me but does not define me. Living with type 1 diabetes, even with its difficulties, I can definitely say that it has taught me the virtue of patience and being patient.

Diabetes UK have a campaign which is designed to raise more awareness for Type 1 diabetes. Its called 4T’s.

4Ts A4 Poster

Please click on the highlighted link above, print and post the poster somewhere so everyone can see it and learn these symptoms. Thank you.